Isn't It Supposed to End Soon?

Four Neupogen shots a day for eight days made my bones hurt to where it a nightmare to walk and impossible to fall asleep. Two consecutive seven-hour days on the Aphoresis machine left my veins bruised, sore, swollen, and reminiscent of those of a junkie. But, for whatever reason, I managed to harvest 6.5 million stem cells for that rainy day when my body stops making its own again and I'm in need of a "rescue transplant."

The stem cell harvesting ordeal preceded this most recent 5-day round of chemo, which marked number twelve and ended this morning. I'm patiently awaiting the inevitable onslaught of nausea, dizziness and stomach pain to drive me into fetal position for a few days, but as of this moment my body is resisting admirably.

I don't know what it was that made me think these final few rounds would somehow be easier to handle than were the others. I've known all along that chemo isn't the kind of thing for which your body can build a tolerance. I've made it this far, though, and there's obviously no way I'm going to slow down now.

My doctor came to see me yesterday, friendly as always, but armed with a dose of reality that I sometimes don't want to hear. The plan is still to complete the two remaining rounds of chemo (two!) and then to have scans done to see how much tumor is still showing up, which will hopefully then be blasted by radiation. Before embarking for Bethesda and the vaccinations, the hope is to have the tumor in remission, but the reality remains that this may not be the case. Furthermore, these vaccines are still in their clinical trial phase, are not exactly specific to my diagnosis, and just can't be viewed as the final piece of my puzzle. Hopefully, they will help teach my immune system to fight the tumor should it reveal itself and begin to grow again, but were that the expectation, we would be viewing these vaccines as significantly medically reliable rather than on a clinical trial basis.

After the rest of the scheduled chemo, the radiation, and the vaccines, I may still need more chemo. There's a chance that small amounts of tumor may still linger, and the best way to ensure that they don't spread will probably be to hit them with more, lower-intensity chemo until nothing shows up in the scans anymore. I'm fine with that, you know, I'd rather keep going until this thing is really in remission than to have to wonder if and when it's ever going to start spreading throughout my bones again. And there's still a good chance, or so I'm told, that I could reach remission on schedule, but I just don't want to be too hopeful. And yeah, I'm pretty scared.

My California girl, the one who has continually reignited my passion and inspiration throughout this hellish process; the one who effortlessly reminded me that there are still things in this world worth looking forward to, hasn't been doing so well. She recently had a seizure, along with a brain hemorrhage, and since then has been coming and going in-and-out of consciousness every few days. When I get a phone call, it's both precious and painful beyond the expression of words. She still makes me laugh, and it can feel like there's nothing wrong and everything is just the way it was, but in the back of my mind I can never help but think that the very conversation we're having could be the last we ever speak. And she's just not something I'm ready to let go of yet. I have too far yet to go to imagine doing it all without her. It's been a week since I heard her voice, and it's another heavy weight I'm willing to bear, but it just hurts on top of everything else. Still, I've known all along that I can't save her, and I knew from the start that I might never feel her close to me, and those are facts I was willing to accept. I'll just never stop wishing things were different. And it's going to hurt, I know that, I just thought we'd ease one another's pain a while longer before I inherited it all for myself.

It's hard to say that I wouldn't trade away my circumstances, or at least certain aspects of them, were I given the chance. I wish my recovery were more of a certainty, though I believe I'll eventually prevail through my persistence. I wish she were able to accompany me for more of the journey, since it seems inevitable that her stay in my life will prove too short, though it will never be under-appreciated.

I obviously feel closer to the end, whenever that might be, than I have at any point thus far. It would just be nice to know that the nightmare will actually end, at some point, preferably in the near future, and that good things await me not so long after that. I still haven't found a reason or a purpose for all of it, and I'm not expecting one to appear. I've been through twelve rounds of chemo, and only two more are scheduled. The wonderful girl from California who changed my life was unscheduled, and I don't think I'll ever find a good reason why the joy she brought me can't last any longer than it will, or why she deserves her fate and I have mine. It just seems very arbitrary. But I guess that's the way it is, and there are no reasons which exist to explain it.

For some reason, though, it still feels like the more effort I put into this incessant, arbitrary injustice, the more likely it is that good things will happen. It still doesn't make total sense to me, but I've already decided to go after the things I want, and I feel way too close to having that chance to become lazy and complacent now.

Sushi

When I was in grade school, my mom would pack my lunch each morning before I left the house. I would go through different phases during which I liked different snacks to accompany my sandwich, which would change as well depending on my preferred deli meat at the time. I remember one particular phase in which I really loved bologna and mustard. I can't remember the last time I had a bologna sandwich.

I've always loved to eat, and I've always been good at it. My grandparents used to be so proud of me whenever I ate a lot; it made me think that having the ability to stuff my face was some kind of legitimate talent.

I still go through periods when I crave different foods; my flavors of the week, if you will, but they don't last forever. That is, my cravings don't last for all kinds of food except for sushi. Sushi has remained the one food I think I could eat every day and never grow sick of it.

I started off with your basic California Roll; avocado, crabmeat, and cucumber. I always use Wasabi (I like spicy foods, and when it comes to those, Wasabi might take the cake) to add some kick and because it really clears your sinuses, and I always use soy sauce for added flavor. I know it's about as elementary as you can get with sushi, but California Roll is just a classic in my opinion.

When I began to broaden my horizons, I tried Unagi, which is freshwater eel. It has a very unique texture, as one might expect when biting into eel, but I'm always eager to try something new and Unagi turned out to be a nice complement to my sushi repertoire.

Those simple days were just the beginning. Now, I'm familiar with many kinds of fish, like the tuna rolls, white or regular, spicy or not, and Tempura, like the shrimp and crabmeat varieties. Salmon roll, yellowtail, octopus, and many others frequent my plate, all of which are prone to disappearance.

There's a restaurant in my town that serves all-you-can eat sushi. They used to offer it every Wednesday and Sunday, but since I've been sick they've made it available every day. The words "all-you-can eat" together with "sushi" are comparable to a song like Unchained Melody to me, for their beauty is timeless and I become very excited whenever I hear them.

Talking at this length about my love for sushi has made me somewhat self-conscious, but I would be lying if I were to claim that my mouth had not begun to water. My palate is now becoming adamant in its demand for it, and under normal circumstances I would readily satisfy its insistence. The only problem that stands in my way, and has for a while now, is that I'm not allowed to eat sushi! Cancer strikes again!

Ode to the Chills

Stop that, wouldn't you?
Funny, nobody's there
That was really me
Who made me feel that way?

But I didn't feel a draught,
And the windows are all closed
Pull the covers over my head
'Cause it's so damn cold

It comes all of a sudden
Up and down my spine
Like a xylophone
Played in ice cold chimes

Make my teeth chatter
Close tightly my eyes
Curl up in a ball
Hands clasped inside

I wish that it had been
Someone close behind
A soft and gentle touch
Send ripples through my mind

A hand upon my shoulder
A different place and time
Pull the covers closer
The only hands are mine

Settle under the sheets
To relaxation, I'll resign
Give myself to rest
Body, soul, and--

No, not again!
!@&% mother#$&*ing sonofa@%$& *##% @%^&!
Shivers, you know, it's fine
My body's own frozen stabbing from behind